Kolden (Kole) was born on July 11, 2009. When he was just weeks old he was diagnosed with Cystic Fibrosis. We were shocked, devastated and scared at the time we found out as we had no clue we were carriers of this disease. He has the Delta F508 mutation which is the most common among patients with CF. With the help of many drugs and therapies, Kole is able to maintain a normal life. He currently takes approximately 16 enzyme tablet per day before meals, nebulizes about 30 minutes worth of antibiotics, and does chest physiotherapy for 1 hour per day. Kole has been very blessed as an infant with CF, he has never been hospitalized and has yet to obtain a lung infection that is so dangerous to patients with CF. We feel very blessed to have received the support of many great professionals in the medical field and also the support from so many family and friends. Those people make this battle much easier to fight.
Kole's Krew is group of family and friends that have come together to fund raise for a cure for CF. All donations received by the group will be donated to the Cystic Fibrosis Foundation and used for researching the cure we wait for. In our first year of raising money for CFF, Kole's Krew has raised over $118,000 that was donated towards research. We have been blessed by the many donors that have impacted our lives.